Quality of life in asthma patients
Qualidade de vida em doentes com asma
Lara Noronha Ferreira1,2,
, Ulisses Brito3, Pedro Lopes Ferreira2,4
Corresponding author
Lnferrei@ualg.pt
Correspondence to/Correspondência para: Escola Superior de Gestão, Hotelaria e Turismo Universidade do Algarve Campus da Penha 8005-139 Faro Portugal Telefone: +351 289800114 Fax: +351 289888404.
Correspondence to/Correspondência para: Escola Superior de Gestão, Hotelaria e Turismo Universidade do Algarve Campus da Penha 8005-139 Faro Portugal Telefone: +351 289800114 Fax: +351 289888404.
1 Professora Adjunta – Escola Superior de Gestão, Hotelaria e Turismo da Universidade do Algarve (ESGHT-UAlg)/Adjunct Professor – School of Management, Hospitality and Tourism, University of the Algarve
2 Centro de Estudos e Investigação em Saúde da Universidade de Coimbra (CEISUC)/Centre for Health Studies & Research, University of Coimbra
3 Director do Serviço de Pneumologia do Hospital de Faro, EPE /Director, Pulmonology Unit, Central Hospital of Faro
4 Professor Associado com Agregação – Faculdade de Economia da Universidade de Coimbra (FE-UC)/Associate Professor – Faculty of Economics, University of Coimbra
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array:3 [ "entidad" => "Director do Serviço de Pneumologia do Hospital de Faro, EPE /Director, Pulmonology Unit, Central Hospital of Faro" "etiqueta" => "<span class="elsevierStyleSup">3</span>" "identificador" => "aff3" ] 3 => array:3 [ "entidad" => "Professor Associado com Agregação – Faculdade de Economia da Universidade de Coimbra (FE-UC)/Associate Professor – Faculty of Economics, University of Coimbra" "etiqueta" => "<span class="elsevierStyleSup">4</span>" "identificador" => "aff0015" ] ] "correspondencia" => array:1 [ 0 => array:3 [ "identificador" => "cor0005" "etiqueta" => "⁎" "correspondencia" => "Correspondence to/Correspondência para: Escola Superior de Gestão, Hotelaria e Turismo Universidade do Algarve Campus da Penha 8005-139 Faro Portugal Telefone: +351 289800114 Fax: +351 289888404." ] ] ] ] "titulosAlternativos" => array:1 [ "pt" => array:1 [ "titulo" => "Qualidade de vida em doentes com asma" ] ] "pdfFichero" => "main.pdf" "tienePdf" => true "fechaRecibido" => "2009-05-08" "fechaAceptado" => "2009-06-23" "PalabrasClave" => array:2 [ "en" => array:1 [ 0 => array:4 [ "clase" => "keyword" "titulo" => "Key-words" "identificador" => "xpalclavsec160549" "palabras" => array:5 [ 0 => "Asthma" 1 => "health related quality of life" 2 => "normative data" 3 => "preference-based measures of health related quality of life" 4 => "SF-6D" ] ] ] "pt" => array:1 [ 0 => array:4 [ "clase" => "keyword" "titulo" => "Palavras-chave" "identificador" => "xpalclavsec160550" "palabras" => array:5 [ 0 => "Asma" 1 => "instrumentos de medição da qualidade de vida relacionada com a saúde baseados em preferências" 2 => "qualidade de vida relacionada com a saúde" 3 => "SF-6D" 4 => "valores normativos" ] ] ] ] "tieneResumen" => true "resumen" => array:2 [ "en" => array:2 [ "titulo" => "Abstract" "resumen" => "<p id="spar0020" class="elsevierStyleSimplePara elsevierViewall">In this paper we present a study whose main aim is the measurement of the Health Related Quality of Life (HRQoL) of patients with asthma and the presentation of a first draft of normative values as measured by the SF-6D for asthma patients. In addition, we investigate how far non-disease-specific HRQoL measures can distinguish groups in terms of sociodemographic characteristics.</p><p id="spar0025" class="elsevierStyleSimplePara elsevierViewall">The Portuguese versions of the EQ-5D, SF-6D, AQLQ(S) and ACQ were administered using personal interviews to a representative sample of the Portuguese population with asthma.</p><p id="spar0030" class="elsevierStyleSimplePara elsevierViewall">Most of the individuals did not report significant problems in the dimensions used, with the exception of the physical functioning, where individuals reported moderate limitations. The mean utility value was 0.86. Male gender, young, single, individuals with high educational attainment level, employed, individuals with high income and those residing in urban areas reported higher utility levels. As expected, those who were in a severe stadium of the disease reported lower mean utility levels than those who were in a less severe stadium of the disease. Normative values for the SF-6D were computed for patients with asthma by gender, age, marital status, educational attainment level, employment status, area of residence and average monthly net income.</p><p id="spar0035" class="elsevierStyleSimplePara elsevierViewall">The preference-based measures used in this study distinguish patient groups with asthma in terms of socio-demographic groups. The normative values can be used in economic evaluation and clinical studies as they incorporate patients’ preferences and translate the value attributed to patients’ health state.</p>" ] "pt" => array:2 [ "titulo" => "Resumo" "resumen" => "<p id="spar0005" class="elsevierStyleSimplePara elsevierViewall">Neste artigo é descrito um estudo, cujo objectivo é a medição da qualidade de vida relacionada com a saúde (QdVRS) de doentes com asma e a apresentação de uma primeira aproximação aos valores normativos, com base no SF-6D, para aquele tipo de doentes. Pretende-se ainda averiguar a capacidade de medidas genéricas de medição da QdVRS distinguirem grupos em termos de características sociodemográficas. Aplicaram-se, por entrevista pessoal, as versões portuguesas do EQ-5D, do SF-6D, do AQLQ(S) e do ACQ a uma amostra representativa da população portuguesa com asma.</p><p id="spar0010" class="elsevierStyleSimplePara elsevierViewall">A maioria dos indivíduos não apresentou problemas significativos nas dimensões medidas, excepto na função física, onde os indivíduos reportaram limitações moderadas. Em média, os inquiridos apresentam valores de utilidade de 0,86. Os homens, os mais jovens, os solteiros, os indivíduos com habilitações literárias mais elevadas, os empregados, os indivíduos com rendimentos mais elevados e aqueles que residiam em zonas urbanas foram os que reportaram níveis de utilidade mais elevados. Por outro lado, os indivíduos que se encontravam num estádio mais avançado da doença reportaram, como era de esperar, níveis médios de utilidade inferiores aos dos que se encontravam num estádio menos grave da doença. Foram obtidos valores normativos para o SF-6D para doentes com asma por género, grupo etário, estado civil, habilitações literárias, situação profissional, local de residência e rendimento médio mensal líquido.</p><p id="spar0015" class="elsevierStyleSimplePara elsevierViewall">As medidas de utilidade baseadas em preferências utilizadas neste estudo discriminam adequadamente grupos de doentes com asma, de acordo com grupos sociodemográficos. Os valores normativos obtidos podem ser usados em estudos de avaliação económica e estudos clínicos, uma vez que incorporam as preferências dos doentes e traduzem a utilidade atribuída ao seu estado de saúde.</p>" ] ] "bibliografia" => array:2 [ "titulo" => "Bibliography/Bibliografia" "seccion" => array:1 [ 0 => array:2 [ "identificador" => "bibs0005" "bibliografiaReferencia" => array:47 [ 0 => array:3 [ "identificador" => "bib1" "etiqueta" => "1." 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| Year/Month | Html | Total | |
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